When we create meaning and help others, we help ourselves heal.

About 6 weeks after the girls died, I thought I would die from my grief. The entire experience of pregnancy and loss felt like a bad dream that I’d imagined. It’s because I never met them. I had no concrete evidence they’d existed. I chose to be “put under” for the delivery, because I was scared, and when I woke up they were gone, no longer in my body. It wasn’t until after that I realized how much I yearned to know what they’d looked like. How I ached for the opportunity to hold my two daughters at the same time, looking at their matching little faces. How much it killed me that so few people ever get to be blessed with identical twins and I was ‘scared’ of the opportunity to meet them and tell them, to their sweet faces, that I loved them. That is a regret I will carry always, yet I have come to peace with the fact that I made the best choice I could at a time when there were simply no good choices.

Six weeks after they died I was at my desk at work, pretending to work, drowning in grief. Like a ton of bricks it all just hit me and I called my mother to ask where the girls were buried. I needed to see them. I needed proof that what I’d lived through was real. In judaism, though it is custom to bury a baby lost during pregnancy, it is very unusual to go to the cemetery , the rabbis handle the burial and the parents often aren’t even aware where the baby is buried. Slowly this is starting to change, but it’s how our ‘situation’ was handled. My mother told me the name of the cemetery. Within seconds I found it online. On their homepage they had a search bar. I punched in my last name and in under a second my girls popped up on the screen, “Fetus A and Fetus B.” I lost it. Bawling tremendous tears at my desk. I printed out the page and have it in their memory box.

How sad it was for me that the first “real world” acknowledgement of their existence was on a website. And how grateful I was to have that acknowledgement.

I visited them the next day. That may have been the day I took my first step towards healing.

When I did go, I brought with me two little rocks from my backyard. on them, using sharpie markers I’d written “Sunshine” and “Daisy”. At that point, the only one who knew that was their names was Elie… I was embarrassed that they had such silly nicknames, but it’s how I thought of them. It’s also custom to leave rocks at the graves of those you visit to let them know you’ve been there, I wanted to leave a little hidden symbol for them.

When I got to the cemetery, it was so sad. The area where the babies were was pitiful. Any of the graves that had markers (mine didn’t) were broken and disgusting. I collected all the little rocks from the area I could find and, together with my rocks from home, made a little pile at their plots.

On the way home I realized what I needed to do. The next day I went to my in-laws home and searched their backyard for 3 nice big rocks. I brought them home, washed them, and started painting them. After seeing their little graves I knew that there was no way I was going to be OK pretending they’d never existed. I used bright, vivid color, painting one to look like a shining sun, and the other a field of white daisies. I accented the rocks with glitter so that they’d sparkle in the sunlight. I envisioned the grass growing richly around their rocks and the color and light peeking through the blades when the sun was shining. I imagined a day when someone would walk by that corner of the cemetery, see the color peeking through the grass and come to take a closer look. They would read my babies names and know that whoever these babies are, they are loved. gravestones

The third rock I painted was for my own garden, at home.  I wanted it to be my own reminder. I also thought it would give me peace of mind to see how the rock withstood the elements, since I didn’t know how frequently I’d be back to check.

It was almost a year before I got to the cemetery again and put the rocks in their forever home. I haven’t been back since.

For a long time I worried that the rocks had been removed, or that they were vandalized.

But then, I got an email from an acquaintance.

“Today is the 1 year anniversary of my due date of my little boy that I lost during my pregnancy. I went to visit the cemetery today, and realized that my son is buried right next to your girls. Your beautifully painted rocks put a smile on my face, and it feels good to know my baby has good company.”

That email literally stole my breath away. I cried from emotions that were so indescribable. I’m reaching for words today and they are escaping me. I think, I can best describe it as a feeling of relief… that this vision I had in my head of someone seeing their graves and knowing they were loved, had materialized in a way that was so much bigger and more meaningful than I’d imagined it could be. That they had brought someone I knew who was suffering some comfort, and for that I felt blessed and grateful. I realized a little while later that had I not made the choice to speak up about my loss, to share my girls and my journey in such a public way, despite my own initial fear and discomfort, she would not have known that those babies were mine. She would not have known that she could contact me and share her own private sorrow. For that I am grateful that I was given the support to always share my voice, my story, and my struggle.

If you are struggling to make sense of your loss or your circumstance, I encourage you to simply open your heart and share your story. You never know who is going to find the strength they need in your voice and honesty.

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Why do I need to write?

I’ve been sitting at this computer at least an hour longer than I know I should be. Spending that hour asleep would be a much wiser use of my time. But I feel like I need to write. That feeling has been eluding me lately. The past four days have been a whirlwind and I can’t tell if it’s that I’m not processing it, or if my processing process is so much different than what it was for most of my life that I am actually processing it and just don’t recognize the process.

So let’s proceed. Here is a rundown of the last 4 days:

Thursday: I learned that my very close friends 23 month old daughter had unexpectedly died. I learned this while at Liat’s school, picking her up because she had a fever and needed to come home. That is actually a story in and of itself. For another time.

….Frankly, I don’t remember much else about that day.

Friday: My younger brother’s wife gave birth to their first baby, a healthy little boy! Very exciting news! I am an aunt again! Yay!

My other very close friend took her precious little six month old to the hospital for invasive, life saving surgery. I waited on pins and needles for news. There were complications. I spent a lot of time waiting.

Both of my girls are home sick. I explain to Molly about death. Not fun nor easy.

Saturday: The six month old sweetie is doing a bit better. We’re not out of the woods but heading in that direction. Thankfully.

I sit and write a long email to a friend about all that’s going on. She replies with words of insight and strength. A few hours later she texts me to tell me her father in law unexpectedly died that morning. Really?

Sunday: I wake up to news that my other younger brother’s wife just gave birth to healthy baby boy! (Please note- this is my other brother’s wife, not my brother’s other wife… in case you were suddenly thinking I was Mormon 🙂 )

Then, I went to a first birthday celebration for a little girl born after her parents struggled for years to conceive her. They are now 4+ months pregnant again.

Then, I went to the viewing and visitation for my friend’s daughter. They asked everyone to wear white rather than black, to celebrate their daughters life.

I created this blog and I speak about remembering the light inside the darkness, and seeing the joy despite the pain.

It’s been a rough couple of days. I really want to meet my nephews.

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What to tell a friend when their child dies.

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Sculpture Image Via The Midnight Orange

This is a post I hesitate to write because it’s not about me. It’s about a beautiful friend of mine who lost her precious daughter this morning. She would have turned two in just a few weeks. It is not my place to write about her loss, but my heart is so broken for her, and this is where I come when my heart is breaking.

As the “resident expert” on babyloss I feel like I am expected to know what to do more than the average person on how to “be there” for her. I don’t feel like that, but in some ways, I suppose it’s true, if only because most people are so clueless. When I visited her this morning she asked me through tears “What am I supposed to do?” and I numbly said “Nothing. I didn’t do anything for weeks.”

That was a painfully stupid reply. It is I that can do nothing. 

I want plan to go back and tell her…

“You should think about your daughter. Talk about her. Remember every little thing about her as vividly as you can. Speak her name. A million times. Write every word she’d learned in her two short years. The way she spoke her brother’s name. The way she said Mamma and Daddy. The foods she loved, and those she hated. Write every memory, every story, every laugh and giggle and smile and hug, every time her eyelashes tickled your cheek. Feel her spirit and presence surrounding you and feel her arms around you.  Cry as loud an you can, as hard as you need to. Write down every word her doctors spoke, though they will be etched on your heart like stone forever anyway. Love her. Grieve her. Celebrate her. Mourn her. Make everyone tell you what they remember about her, what they love about her, how she made them feel when she smiled at them or reached out her arms to be held by them. Soak in every fleeting thought and comment…. and breathe. Second to second, minute to minute. … and don’t think beyond that.”

And then I will ask her to tell me everything about her little girl. I will sit with her in her pain. I will sit in her memories and confusion, in her fear and isolation. I’ll sit as long as she wants, or I’ll leave as soon as she wants.

I went this afternoon and brought journals for them. One for my friend, one for her husband and one for their family and friends to write their memories of my friend’s daughter. One thing I do know is that after a baby is gone every single memory becomes the very fabric of that person’s existence. For moms whose babies died before they had a chance to live, it is the morning sickness, the stretch marks, the hospital visits, the words the doctors spoke. Those few memories equal a baby’s whole life. This child was almost 2 years old. My friend is entitled to every single memory created in those 700+ days. I hope her friends and family fill that journal cover to cover with all the beautiful things – big and small – they remember about this sweet little girl. Not to fill it with condolences, but to fill it with moments of blessings and sweetness and laughter and joy, because that is what this little girl brought to the world.

Stop being afraid… Then, do a happy dance.


SO Excited!!!
I am now officially a regular contributor to Still Standing Magazine!
Today my first post went live and I am so proud to be in the company of the amazing women (and one dude) that get to write for them on a regular basis!
My friend Beryl from The Muchness Meets Photography Challenge is a contributor there and it was really she (though she doesn’t know it) that gave me the confidence to approach them about writing. Ya know, for a year I’d thought about asking for the opportunity, but didn’t have the guts to just do it.
So, ya know what I have to say (to you AND to me???)
Stop being afraid to ask for what you want!! I woke up the morning after I quit my job with a fresh outlook and the first thing I did was write them an email asking if I could be a contributor.
They said no.
But they did offer me to write a guest post, which I did that same day.
And then, about a week later, they asked me to be a contributor.
And I totally happy danced around the living room like a dork. My goal for 2013? Plant more scary seeds which give me more reasons to potentially dance around the living room like a dork.
…after all, my living room is MADE for dancing.

Miscarriage, Muchness and finding time to write a blog post.

“….I miscarried like 2 weeks ago…thought I was over it but had a doc appt today…just finished bawling…well maybe not finished”

I receive that text message from a friend today. 🙁

I replied- “OOOOh- I am so so sorry… You should not set your goal as getting “over it”…. that’s just a false perceived endpoint and an almost impossible spot to get to…. and actually, not a logical spot to want to get to”

if i dont put it out of my mind i’ll be a wreck

It doesn’t work that way.

…but hey I’m listening

you can’t just “put it out of your mind” and expect it to be out of your mind. you kinda just have to let it flow through you. it will. and you will eventually come to a place of peace with it.

k

If there is one thing I know—- time does not pass any quicker or any slower just because you tell it to…. and the ONLY thing that will help you deal with it is time…. the second thing is what you do with that time. If you spend that time “putting it out of your mind” it’s gonna find it’s way out in ugly ways and you won’t know how to process your behaviors.

k

heeh muchness! …hey u just wrote a blog post!

I know…. I write effing blog posts all the time in private convos with people…. I never get a chance to rewrite & post them ‘cuz I’m so disorganized.

copy paste n edit yo!

done. Thanks for letting me share it!

cool but not with a name

never with a name…

“God only gives us what we can handle” and other untruths.

On facebook today a friend posted a comment about how stressed she was. I read through the comments and came upon the obligatory “God only gives us what we can handle” platitude.

I came very close to posting a reply but decided I wasn’t in the mood to educate one stranger about the stupidity of that concept at the expense of the general niceness on my friends wall so I decided to come here and vent about it instead.

Three weeks after the twins died I went back to work. For weeks I’d been hearing platitudes like that that and they ran through my brain constantly. On the way to work the first day back, in Port Authority, I noticed for the first time a woman sitting on the floor crying. I wondered if she was OK but kept going on my way. I was probably crying too, as I did a lot on those walks in the early days.

Then I saw her again the next day, same spot on the floor, crying.

And the next day.

And I thought to myself, “Clearly, God has given this woman more than she can handle.”

It’s been three years and I still see her there from time to time. Same spot, on the floor, crying.

In my mind I’ve invented a story about her where her son was sent to war and died. I don’t know why I created that story, but I just imagine that there are few things worse than the death of a child and this woman has clearly been through a lot. Maybe I’m being kind, and she’s simply a crack addict who cries all day and takes drugs all night. I have no idea. But there are people all over who have nervous breakdowns, get institutionalized and /or put guns in their mouths all the time. I suppose nobody ever shared with them that God wouldn’t have given them more than they could handle. Clearly, that tidbit of insight would make a world of difference. 

While I’m here and feeling so generous and snarky with the advice, let me suggest the following:

“Everything happens for a reason.” is not a statement of fact.

“He’s in a better place.” has never brought a baby loss mom an ounce of comfort.

…I’ll stop before I get carried away.

And to my friend who is feeling stressed, I have no great advice for you except to wear happy colors and know that you’ve helped me manage my own stress in a million ways, so thanks! You rock. 🙂

 

 

 

Baby loss from a Jewish Perspective

I’m so proud to share that last week I guest blogged at Still Standing Magazine. It’s a wonderful magazine written by a collection of inspiring women navigating the heartache and sorrows of baby loss and infertility.

I woke up one morning and out of the clear blue decided they needed my voice in their mix. The voice of a Jewish woman. So I summoned up all my courage and wrote to ask. I don’t know why I was so compelled. I’m not the most religious person you’ll ever meet and I almost never mention my religion on this blog, it’s not intentional, it just never seems to come up.

But I know that being Jewish has entered into the thought processes, rituals and choices I’ve made regarding how to handle our loss in many ways. And I know that, as a vocal baby loss mother, there are women in the Jewish community who have found comfort in my openness. I would never claim to speak for anyone besides myself, but I am proud that just by being here, I’ve allowed them to know they’re not alone. My hope is that by becoming a contributing writer there, I can do the same for a larger audience, and for women of all religions. My goal is to write posts that offer insight into different laws, customs, opinions and traditions regarding pregnancy and infant loss and my hope is that may be both compelling in their differentness and comforting in their sameness, or vice-versa.

My first post, entitled “Things You Don’t Forget” can be seen here.

My articles will appear in their online magazine on the second thursday of every month. Mark your calendars! 😉

Would love it if you’d comment and let me know your thoughts on the article.

If I’d never shared their names

In honor of Pregnancy and Infant Loss Awareness Day, I want to share this poem I wrote a few weeks ago after the three year anniversary of our loss.

Sometimes I think back to my pre-loss opinions, that “stuff like this happens and you move on” and the foolish idea I had early on that we would basically “keep it to ourselves” …and then I look at where I am now, and wondered if maybe, at three years,  I’d be more “over it” if I’d followed conventional (old, faulty) thinking and just kept quiet and ‘put it behind me’…

That was my thought when I sat down to write this poem, which practically fell out of me. But oddly, the idea that that would have been a better way to deal with it, I honestly couldn’t even connect enough words to express that thought, because it is so unrealistic.

The poem isn’t perfect. I’m nobody’s poet. And it might have echoes of Dr. Seuss in it’s rhythms, but whatever.

If you like it and it means something to you, please let me know.

I wonder how it’d be different

I wonder how it’d be different if I hadn’t shared their names
If I’d kept them to myself and I hadn’t shared my pain
I wonder how it’d be different if I’d kept them to myself
If I’d hid all of my sorrow and I’d never asked for help.

Now at three years later would I still think of them daily
Would I see them in the little things
and hear their names in passing winds.

How would things be different If I’d never Shared their names?

Would the word “twins” make me cringe inside the way I do today.
Or would it be more obvious and would my tears betray
Or maybe it’d be different, I’d hardly think of them myself.
They’d be locked up safe inside of me if I’d never asked for help.

People would have forgotten, or they’d speak in whispered tone,
about the girl I once was, before my broken home.

At least this way I love them in the best way that I know.
To put my heart out on the line so maybe I can show
These losses they don’t disappear and there’s pain inside our hearts
And there’s no harm in acknowledging these slightly broken parts.

They make us strong, they make us proud they make us who we are.
They’re a symbol of the love we have and like a badge or scar
It is my choice to show the world this love I have inside
for the gift I have that changed my life, despite the tears I cried.

How would things be different If I’d never Shared their names?

-Tova Gold

Their Hand Painted Grave Markers.

Three Years ago today we said goodbye

September 25, 2009. Three years ago today, we said goodbye to our twin girls, forever nicknamed Sunshine & Daisy. At the depths of my grief lived a fear that my baby girls would be forgotten. That their short lives and their death inside of me would be a loss without meaning. But now, I know that is not the case. In their honor and memory I’ve shared their story with medical students who might one day find themselves faced with a patient in my shoes. I’ve shared my regrets with my own doctor, so perhaps a future loss mom will get the handprints and footprints I wish I’d have asked for. I’ve shared information and support with other pregnant twin mothers to help make sure they receive the care they need. I’ve opened others’ eyes and raised awareness about TTTS, which kills too, too many babies every year- many due to lack of information and knowledge about this disease. I’ve created a TTTS grief support group for other parents whose babies have been stolen from them by this monster, giving them a safe place to share their babies and their sadness and grief and know they’re not alone.
And I’ve helped women heal. Discovering The Muchness was my girls’ gift to me. It is a project that uses all that is the best in me to help me help others find the best in them. It is what helped me see my pain as a blessing, my loss as a gift and my future as a happy, love-(and-sparkle)-filled place I proactively want to build with my family.
I know now that my girls won’t be forgotten. They live on in me, in their dad and sisters, and in every person that has been touched by the projects they’ve given me the strength to create and share.
On the first anniversary of their loss, a few weeks before Liat was born, I created this memorial video in their honor. At that point I did it for me and planned to share it with just a handful of people, but when it was complete I couldn’t just keep my girls to myself. I shared it with just about everyone who mattered to me. At the time it was about 60 people. But my heart has grown and now anyone in this community who is touched by my words matters to me, and I’m sharing it again.


Thank you for reading, for watching, and for joining me on this journey.

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